NativeDATA: A data sharing resource for Native peoples and organizations

The Northwest Tribal Epidemiology Center’s IDEA-NW project is pleased to announce the launch of NativeDATA– a free online data sharing resource for Native peoples and organizations.

At times, Tribes and Native-serving organizations face barriers in accessing health data.  These groups are also frequently asked to share data without any guarantee of benefit to the community or communities they serve.  To support Tribes and Native-serving organizations in obtaining and sharing health data, the Northwest Tribal Epidemiology Center’s IDEA-NW Project, alongside an inter-disciplinary team of experts from across the nation, developed NativeDATA.

Throughout, NativeDATA offers practical guidance for obtaining and sharing health data in ways that honor Tribal sovereignty, data sovereignty, and public health authority.

Inside users will find expert advice on:

  • Requesting health data
  • Building strong data sharing partnerships
  • Developing protective data agreements
  • Planning for the approvals process
  • Sharing your health data
  • Exercising data sovereignty
  • Communicating effectively about data sharing
  • Learning about your rights

NativeDATA also offers inspirational stories from Tribes, Tribal organizations, and their partners who have successfully navigated the data sharing process.

We are excited to share this national resource with Tribes, tribal, and urban Indian organizations, and with partners from across Indian Country who are seeking to advance the health and healthcare of Native peoples.

To learn more about NativeDATA, visit NativeDATA.npaihb.org, or email the NativeDATA team at ideanw@npaihb.org.

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