NativeDATA: A data sharing resource for Native peoples and organizations

The Northwest Tribal Epidemiology Center’s IDEA-NW project is pleased to announce the launch of NativeDATA– a free online data sharing resource for Native peoples and organizations.

At times, Tribes and Native-serving organizations face barriers in accessing health data.  These groups are also frequently asked to share data without any guarantee of benefit to the community or communities they serve.  To support Tribes and Native-serving organizations in obtaining and sharing health data, the Northwest Tribal Epidemiology Center’s IDEA-NW Project, alongside an inter-disciplinary team of experts from across the nation, developed NativeDATA.

Throughout, NativeDATA offers practical guidance for obtaining and sharing health data in ways that honor Tribal sovereignty, data sovereignty, and public health authority.

Inside users will find expert advice on:

  • Requesting health data
  • Building strong data sharing partnerships
  • Developing protective data agreements
  • Planning for the approvals process
  • Sharing your health data
  • Exercising data sovereignty
  • Communicating effectively about data sharing
  • Learning about your rights

NativeDATA also offers inspirational stories from Tribes, Tribal organizations, and their partners who have successfully navigated the data sharing process.

We are excited to share this national resource with Tribes, tribal, and urban Indian organizations, and with partners from across Indian Country who are seeking to advance the health and healthcare of Native peoples.

To learn more about NativeDATA, visit NativeDATA.npaihb.org, or email the NativeDATA team at ideanw@npaihb.org.

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Upcoming Events

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NIHB presents National Tribal Health Conference | Sheraton Grand at Wildhorse Pass in Chandler, Arizona | LEARN MORE AND REGISTER

75 Years Later:  The Impact of the 1950 Papers on Smoking and Lung Cancer | This symposium will celebrate the achievements that have occurred over the past 75 years in the fields of tobacco control, lung cancer epidemiology and causal inference.  Two seminal papers on lung cancer and smoking initiated these three areas of scholarship in 1950.  Since then, significant public health, policy, and research contributions have been made by scholars around the world.  In this symposium, speakers will highlight such accomplishments and present their current research in these fields. | DOWNLOAD FLIER | REGISTER HERE

Association of American Indian Physicians 53rd Annual Meeting | Hyatt Regency Seattle in Seattle, Washington | LEARN MORE AND REGISTER

National Lung Cancer Screening Day | Now in its fourth year, this initiative is kpowered by a dynamic collaboration among the American Cancer Society's National Lung Cancer Roundtable, GO2 for Lung Cancer, the Radiology Health Equity Coalition, and the American College of Radiology. | LEARN MORE